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Anne is 56 and is a married mother of two. In 2014, she was diagnosed with a rare form of dementia called posterior cortical atrophy, also known as Benson’s syndrome.

A bit about Anne

She works with the Scottish Dementia Working Group. They use cash, raised through Red Nose Day, to support user-led groups of people with dementia to connect with and support each other so they can shape policy, practice and attitudes..

The diagnosis

“I was diagnosed with Posterior Cortical Atrophy in June, last year. It’s a very rare strain, the same type as author Terry Pratchett. It presents in younger people and affects things like writing, dealing with numbers and the way my brain processes what my eyes see.”

“When you get diagnosis, nothing prepares you for how devastating it is. I can understand that people are scared to get diagnosis because once you open the bottle you can’t put the genie back. For me it became so stressful that I had to know the facts.”

Every year 225,000 people develop dementia in the UK, that’s one every three minutes.

Source: Alzheimer's Society

Hear some inspirational words from Anne

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Challenges

“For people with Alzheimer’s, noise is an issue. You can almost go into your own bubble. You’re aware of something, but you need a quiet place to shut down. Our brains need time to process information and there’s a limit to how much we can take in at one time.”

“Escalators are difficult. I can’t see where one step ends and another begins so it’s hard to step off. People behind can get impatient or even give you a push. I understand that people are busy but, if everyone was a bit nicer to each other, the world would be a better place.”

Living well with dementia

“I’ve never thought why me. It’s just one of those things and it could happen to anyone. I’m trying to live well and normally. I go out for meals, to the cinema, on holiday, I have girls night outs. I’m more aware of how precious life is.”

“As far as I’m concerned, I’m still me. I know there are scary times further down the road but I’m not wasting my time worrying. The type of dementia I have affects the back of the brain and is supposed to be a slow burner. I hope so!”

Fundraise and make a difference

Improving life for people with dementia and their carers is very important to us and just one of the many issues we fund in the UK, together with our work in Africa. To join in this Red Nose Day, download a free fundraising kit.

Download a free Kit now

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